This isn’t how the story is supposed
to go. We closed a chapter, remember? The characters aren’t supposed to walk
back through chapter 1 when they are acting chapter 2.
But, Kate is back in the hospital.
On Tuesday, they stuck leads back on
her chest and plugged her in to the monitors. They stuck an IV in the same spot
above her left ear where she used to have her PICC line. They stuck her with
needles and swabbed her nose.
We walked into the same hallways
that we walked out of six weeks ago.
And it is all sickeningly familiar.
A long story short: Kate got sick,
so we are back in the hospital for a few days. Because of the trach, any
illness Kate contracts is immediately a big deal because it compromises her
airway. Imagine having a really stuffy nose but having duct tape over your
mouth—that is basically how it feels for Kate to breathe when she is sick.
Thankfully, she seems to be doing
much better now than she was doing Monday or Tuesday. Her fever has broken, and
her secretions are slowly becoming more manageable. As soon as the doctors can
identify exactly what she has and give us the right medicine, Kate will be
discharged.
Kate is in the safest place right
now. She should come home very soon, and she will keep on thriving. But, that
doesn’t make it any easier to come home to an empty crib. Or to wake up in the
morning with the dull ache that reminds me things are out of order. Again.
I’m not sure what I expected after
coming home from our NICU stay. I knew it would be hard, I knew that we could
land back in the hospital—that, in fact, it was inevitable because of the
trach. But I didn’t know that the proverbial bumps along the road would send me
sprawling across the pavement. That the smell of Purell in a hospital room
would bring back so sharply the sting of helplessness.
And so, like David writes over again
in his Psalms, I ask, How long? How long, O Lord? How long does she have to
suffer? How long is she going to need this trach?
But I see my own impatience. I want
to hurry to the end of the story and be done with pain. Be done watching my
baby hurt.
But what if it is pain that changes
us? That slowly carves us down to whom we are meant to be?
They say patience is a virtue. And
so it is. The apostle Paul calls patience a fruit of the Spirit. And here’s
what I think that means: patience is not something I can grow myself.
I can talk patience, I can think
patience…try as I might, I cannot engineer patience. It is only when I must live
patience that I can harvest that fruit.
So, we wait. We wait for results, for
a treatment plan. We wait for Kate to come home again. And then we will wait
some more. For the story to play out, for that day when we can look back and
say, “Remember when?”
And we will remember that this was
hard. But we will remember that He grew us.
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